Raising Autism Awareness

Today, there are many organizations geared towards raising autism awareness. Two of the organizations that do their part to raise the awareness level for autistic spectrum disorders are The Autism Society of America and Autism Speaks. These are the two most popular organizations focused on helping individuals who have autism. These organizations work to raise money for research by hosting benefits and walks, among other programs. The more that is known about these disorders, the higher the likelihood of more breakthroughs in treatments.

The Autism Society of America, or ASA, began in 1965 by founder Bernard Rimland, Phd. The ASA is actually the largest, not to mention the oldest grassroots organization, in the autism community. Today, the ASA is well on its way to having over 200 nationwide chapters and has well over 120,000 members and supporters, all dedicated to raising autism awareness. Autism Speaks is an advocacy organization, based in New York City, which also works to raise the awareness level of autism and to promote research. This organization was founded in February of 2005 by Bob and Suzanne Wright, with the hope of finding a cure for the different autism spectrum disorders. The Wright’s became seriously interested in the disorders after their grandson was diagnosed with autism.

The month of April has been designated as Autism Awareness Month. During April, U.S. television shows dedicate episodes to different aspects of autistic disorders. Also, many companies and organizations have teamed up to raise awareness for autism disorders and funds to help with research. In December 2007, a resolution that declared April 2nd as World Autism Awareness Day was passed by the United Nations. Having awareness raised to these levels is extremely important if huge strides will ever be made in solving the autism puzzle.

It is important to raise autism awareness to both allow individuals to understand these disorders and to help raise the needed funds for more extensive research, and hopefully someday, develop a cure. If you have a family member who has been stricken by one of these disorders, then you totally understand how important this research can be. There are those in the world whose lives have not been touched by these issues and may not fully understand the importance of finding a cure. Organizations, such as The ASA and AS, work to heighten the awareness level of autism. Hopefully, a cure will be found one day.

Read more on Autism here.

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Understanding Asperger Syndrome

Individuals who suffer from a disorder that causes impaired social behaviors, slow repetitive patterns and decreased motor abilities are normally diagnosed as having Asperger syndrome or AS. This disorder shares many of the same symptoms as high functioning autism and is in the autism spectrum of disorders, making it difficult to diagnose. While they are similar, they do have their differences and at times are treated differently. Also, those individuals with AS differ from autism patients in that there are normally no language skill delays.
Torley Speaks at Bounce for Autism
Hans Asperger, an Austrian pediatrician, was the first to pinpoint the disorder in 1944, when he described his patients as failing to demonstrate empathy, as well as lacking nonverbal communication skills. It wasn’t until 50 years later that this syndrome was finally recognized and classified as an actual disorder. Today, there are still many questions about the autistic disorder-like impairment. There has long been doubt about the differences in high functioning autistic individuals and those that have AS.

Treatments for Asperger syndrome attempt to manage the symptoms of the disorder, for both communication and vocational skills, depending on the age of the individual. The interventions that are used for treatment are normally tailored to suit the specific needs of the individual. There have been a lot of progressions made in the last few years and adaptations to the process of treating this disorder; however, there isn’t any complete data to support particular intervening methods. Because AS is in the autism spectrum, some of the same procedures and techniques can be used with patients that have high functioning autism.

Asperger syndrome is one of many disorders that fall within the autism spectrum. There have been many studies and much research done to try and find out more about this disorder. While a lot of information has been discovered, there is still much more to learn. Experts understand some of the reasons why individuals may have this disorder but, as with other disorders, such as autism, not all of the answers have been found. Much has been discovered to help those afflicted to increase their social skills and to stop repetitive behavior skills. Helping individuals to increase these skills allows them to live a more prosperous lifestyle and have a more productive future.

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“On Being Mom” by Anna Quindlen

HI Parents! As I was clearing out old emails this week, I ran across a story by Anna Quindlen that one of my co-workers sent to me many years ago. I thought all the Moms, and even the Dads, would enjoy this story.  Thanks for reading, Bev

“If not for the photographs, I might have a hard time believing they ever existed. The pensive infant with the swipe of dark bangs and the black-button eyes of a Raggedy Andy doll. The placid baby with the lower lip that curled into an apostrophe above the chin.

All my babies are gone now. I say this not in sorrow but in disbelief. I take great satisfaction in what I have today: three almost-adults, two taller than I am, one closing in fast. Three people who read the same books I do and have learned not to be afraid of disagreeing with me in their opinion of them, who sometimes tell vulgar jokes that make me laugh until I choke and cry, who need razor blades and shower gel and privacy, who want to keep their doors closed more than I like.

Who, miraculously, go to the bathroom, zip up their jackets and move food from plate to mouth all by themselves. Like the trick soap I bought for the bathroom with a rubber ducky at its center, the baby is buried deep within each, barely discernible except through the unreliable haze of the past.

Everything in all the books I once poured over is finished for me now. Penelope Leach, T. Berry Brazelton, Dr. Spock. The ones on sibling rivalry and sleeping through the night and early childhood education, all grown obsolete. Along with Goodnight Moon and Where the Wild Things Are, they are battered, spotted , well used. But I suspect that if you flipped the pages dust would rise like memories.

What those books taught me, finally, and what the women on the playground taught me, and the well-meaning relations - what they taught me was that they couldn’t really teach me very much at all. Raising children is presented at first as a true-false test, then becomes multiple choice, until finally, far along, you realize that it is an endless essay. No one knows anything. One child responds well to positive reinforcement, another can be managed only with a stern voice and a timeout. One boy is toilet trained at 3, his brother at 2. When my first child was born, parents were told to put baby to bed on his belly so that he would not choke on his own spit-up. By the time my last arrived, babies were put down on their backs because of research on sudden infant death syndrome.

To a new parent this ever-shifting certainty is terrifying, and then soothing. Eventually you must learn to trust yourself. Eventually the research will follow.

I remember 15 years ago pouring over one of Dr. Brazelton’s wonderful books on child development, in which he describes three different sorts of infants: average, quiet, and active. I was looking for a sub-quiet codicil for an 18-month-old who did not walk. Was there something wrong with his fat little legs? Was there something wrong with his tiny little mind? Was he developmentally delayed, physically challenged? Was I insane? Last year he went to China. Next year he goes to college. He can talk just fine. He can walk, too.

Every part of raising children is humbling, too. Believe me, mistakes were made. They have all been enshrined in the Remember-When-Mom-Did Hall of Fame. The outbursts, the temper tantrums, the bad language, mine, not theirs. The times the baby fell off the bed. The times I arrived late for preschool pickup. The nightmare sleepover. The horrible summer camp. The day when the youngest came barreling out of the classroom with a 98 on her geography test, and I responded, What did you get wrong? (She insisted I include that.) The time I ordered food at the McDonald’s drive-through speaker and then drove away without picking it up from the window. (They all insisted I include that.) I did not allow them to watch the Simpsons for the first two seasons…What was I thinking?

But the biggest mistake I made is the one that most of us make while doing this. I did not live in the moment enough. This is particularly clear now that the moment is gone, capurtured only in photographs. There is one picture of the three of them sitting in the grass on a quilt in the shadow of the swing set on a summer day, ages 6,4 and 1. And I wish I could remember what we ate, and what we talked about, and how they sounded, and how they looked when they slept that night. I wish I had not been in such a hurry to get on to the next thing: dinner, bath, book, bed. I wish I had treasured the doing a little more and the getting it done a little less.

Even today I’m not sure what worked and what didn’t, what was me and what was simply life. When they were small, I suppose I thought someday they would become who they were because of what I had done. Now I suspect they simply grew into their true selves because they demanded in a thousand ways that I back off and let them be.

The books said to be relaxed and I was often tense, matter-of-fact and I was sometimes over the top. And look how it all turned out. I wound up with the three people I like best in the world, who have done more than anyone to excavate my essential humanity. That’s what the books never told me. I was bound and determined to learn from the experts.

It just took me a while to figure out who the experts were.”

Hope you enjoyed it….here’s a little bit about Anna Quindlen:

Over the last 30 years, Anna Quindlen’s work has appeared in some of America’s most influential newspapers, many of its best-known magazines, and on both fiction and non-fiction bestseller lists. She is a novelist and also writes the prestigious “Last Word” column in Newsweek magazine. Her latest novel, Blessings, is a New York Times bestseller and was recently made into a television movie starring Mary Tyler Moore. Quindlen is currently working on a new collection of essays, Loud and Clear, to be published in April 2004.

Find out more about Anna: http://www.randomhouse.com/rhpg/annaquindlen

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ATTENTION PARENTS: FREE 1/2 HOUR ADVOCACY CONSULTATION

School is back in session and your kiddo is already having difficulties.

Are they behind in Math or Reading? Perhaps they are struggling with peer relations or following teacher directions? Maybe the IEP needs to be reviewed?

Or you feel there is a problem, but you just don’t know what it is. You know you need to do something……but you don’t know what.

We have the answer!

A FREE 1/2 HOUR ADVOCACY CONSULTATION

Schedule your consultation by visiting our website K12Advocates.com and go to the “CONTACT US” tab and send us an email with your name, phone number & best times to call. We will confirm your consultation time & we will initiate the call.

Hope to hear from you & hope to help you soon.

Your K12 Advocates,

Ailsa & Bev

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ADD & DIET

Fresh vegetables are common in a healthy diet.Image via Wikipedia

ADD & Diet

ADD in many cases has been linked to diet, which includes food allergies and nutritional deficiencies…simply eliminating certain foods or adding others may reduce symptoms or eliminate them altogether. ADD children typically have difficulty focusing which is even more apparent if they have sugar and other stimulants coursing through their bodies. We believe it is worth attempting to address the ‘root’ of the problem first, if it is indeed nutritional, before ingesting the potentially toxin pharmaceutical alternatives that merely mask the symptoms. Making healthy food choices for you and your child is NOT difficult. There is NO downside to adopting a healthy eating program and huge benefits for everyone, whether dealing with a current health issue or preventing future ones.

Another suggestion for a healthy diet may be to consider buying certified organic products…these are foods which are grown without the use of potentially harmful long-lasting pesticides, herbicides and fungicides. Since organic foods are also grown without genetically modified seeds, sewage sludge or irradiation, some people feel that this is a more wholesome choice. If you choose to adopt the strategy to “cleanse” the body first to reduce symptoms of ADD, this may be an option you would like to consider. Imagine if we put dirty fuel in our cars and never changed the oil…how efficiently do you think they would run?

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Understanding Your Child’s IEP

When parents share their child’s Independent Educational Plan or IEP with me, they frequently tell me that they don’t understand it, they disagree with it, or they neither understand it nor agree with it. These problems seem to be the common denominator in many advocacy situations, and parents of children with a variety of disabilities from autism to Down Syndrome, dyslexia or emotional disabilities describe the same feelings of confusion and uncertainty about how to resolve these problems.
It may surprise parents to know that their child’s IEP document is intended to represent the shared opinion (or consensus) of […] Continue Reading…

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Behavioral Intervention Plan

A Behavior Intervention Plan (BIP) takes the observations made in a Functional Behavioral Assessment and turns them into a concrete plan of action for managing a student’s behavior. A BIP may include ways to change the environment to keep behavior from starting in the first place, provide positive reinforcement to promote good behavior, employ planned ignoring to avoid reinforcing bad behavior, and provide supports needed so that the student will not be driven to act out due to frustration or fatigue. When a behavior plan is agreed to, the school and staff are legally obligated to follow it, and consequences of […] Continue Reading…

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ADD & DIET

ADD & DIET
The following information is suggested diet recommendations by Doug Cowan, Psy.D. MFCC for www.oneaddplace.com. Enjoy the article and Happy Eating!
ADD in many cases has been linked to diet, which includes food allergies and nutritional deficiencies…simply eliminating certain foods or adding others may reduce symptoms or eliminate them altogether. ADD children typically have difficulty focusing which is even more apparent if they have sugar and other stimulants coursing through their bodies. We believe it is worth attempting to address the ‘root’ of the problem first, if it is indeed nutritional, before ingesting the potentially toxin pharmaceutical alternatives that […] Continue Reading…

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What Is Attention Deficit / Hyperactivity Disorder

Attention-Deficit/Hyperactivity Disorder (AD/HD) is a condition that can make it hard for a person to sit still, control behavior, and pay attention. These difficulties usually begin before the person is 7 years old. However, these behaviors may not be noticed until the child is older.

Doctors do not know just what causes AD/HD. However, researchers who study the brain are coming closer to understanding what may cause AD/HD. They believe that some people with AD/HD do not have enough of certain chemicals (called neurotransmitters) in their brain. These chemicals help the brain control behavior.

Parents and teachers do not cause AD/HD. […] Continue Reading…

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Advocacy Means Speaking for Others

A very wise person told me that to be an advocate you need to know 3 things: yourself, the person you are advocating for and the system you are working with.
 
As parents you advocate for your children from the moment they become the center of your world, it is part of the job description!  You have absolute authority because no-one knows your children like you do.
 
Before you even became parents you were pretty accomplished self-advocates: used to figuring out what you need and making it happen, with varying rates of success of course.  Again, you are the […] Continue Reading…

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